Culture

Thalassaemia Society raises alarm after death of eight patients

A ninth patient died on Thursday.

12 Aug 2019, 9:00 AM
Maya Mauroof
The Maldives Thalassaemia Society has raised concerns following the death of eight patients over the past two months. 
Thalassaemia patients require regular blood transfusion due to abnormal haemoglobin production. The Maldives has the highest prevalence of the inherited blood disorder in the world and the number of Thalassaemic patients have been on the rise
In a statement last week, the Maldives Thalassaemia Society expressed concern over the poor management and treatment of patients in the country, stressing the lack of improvement over the years “despite rigorous efforts and work from our side.” 
MTS was established as an NGO in 1996 to advocate for the rights of Thalassaemia patients and their families. 

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